So You Think You Have Lipedema? Recognizing Symptoms and First Steps

What is Lipedema?

Lipedema is a condition involving abnormal fat accumulation, often in the legs and arms, that doesn’t respond to typical diet or exercise. It’s estimated to affect up to 11% of women worldwide, per studies from the Lipedema Foundation.

If you suspect you have Lipedema

  • Common signs include disproportionate fat in the lower body, easy bruising, pain or tenderness in affected areas, and texture like orange peel skin.
  • It’s distinct from lymphedema or obesity—diagnosis requires professional evaluation.

Early Steps

  • Schedule a thorough exam with a healthcare provider experienced in lymphatic disorders (e.g., Vascular Surgeon or Endocrinologist or Physical Therapist). You can find a list of providers that have experience with Lipedema suffers here.
  • Ask questions! Since Lipedema is not common part of may healthcare providers training, questions such as, “Does your provider formally diagnose a condition called Lipedema? Would they write a supporting letter for my insurance to cover treatment?” are key to making this portion of the process as efficient as possible.
  • Document symptoms with photos and a journal to share during your visit.